How to Take Part

NL Genome Project Status

altCurrently Enrolling Participants

You can take part in this pilot phase of the NL Genome Project if you meet the eligibility criteria and are a patient of one of the participating doctors.

Where can I take part?

The following doctors are participating in the NL Genome Project and accepting their current patients.
Dr. David Brentnall
Family Medical Clinic/Walk In Clinic
Suite 201, 1489 Topsail Road
Paradise, NL
A1L 1P9
709.781.8715
Dr. Dennis O'keefe
Commonwealth Medical Clinic
Suite 201, 1489 Topsail
Mount Pearl, NL
A1N 1W7
709.364.7555
Dr. Karl Misik
Topsail Road Medical Clinic
644 Topsail Road
St. John's, NL
A1E 2E2
709.368.2101
Dr. Emily Godec
Clarenville Medical Arts Clinic
105 Manitoba Dr #204
Clarenville, NL
A5A 1K2
709.466.2631
Dr. Jacqueline Elliott
Port Blandford Medical Clinic
244 Main Street
Port Blandford, NL
A0C 2G0
709.543.2490

Who can take part?

If you meet the following criteria, you’re eligible to participate in the NL Genome Project

  • -18 years of age or older
  • -Have a valid MCP #
  • -Able to provide written informed consent
  • -Willing to be re-contacted
  • -Willing to have your coded data shared with researchers both inside and outside of Canada

How does it work?

Before you decide whether or not to take part, a research nurse will give you an information pamphlet outlining the entire project and will review the project with you, explain any potential risks, and answer your questions. Remember, it’s completely up to you whether or not you take part!

Consent to Join the Study

Consent to Join the Study

You will first complete and sign the consent form to enroll in the NL Genome Project and grant permission for us to use your medical records for research. Then you’ll provide your contact information and fill out a health questionnaire.

Provide a Saliva Sample

Provide a Saliva Sample

Provide a saliva sample (less than half a teaspoon) by spitting in a tube. We’ll extract DNA from your saliva and analyze it using techniques like genotyping and sequencing.

We'll Study Your DNA

We'll Study Your DNA

We'll combine and analyze the DNA, medical records, and health information from all our participants and look for patterns and genetic changes that could help us better understand health and disease. Read more about our research here!

Return Findings and Stay in Touch

Return Findings and Stay in Touch

Any findings that potentially impact your health will be returned to your doctor to discuss with you and our genetic counsellor, if you choose to receive them. Personal Traits will be shared directly with you.

Why take part?

People take part in health research for many different reasons, whether to help advance science or to learn more about their own health.

It's important to remember that you are the only person who can decide whether taking part is right for you. To help you through this process, a research nurse at your doctor’s office will review the project with you, explain any potential risks, and answer your questions. You can alsoreach out to ushere if you have any other questions.

sequencebio

St. John’s based biotechnology company Sequence Bio is leading the NL Genome Project.

Sequence Bio’s Chief Scientific Officer, Michael S. Phillips, PhD, is the Principal Investigator of the study. Sequence Bio’s Director of Research, Gerald Mugford, PhD, and Dr. Dennis O’Keefe are the Co-Principal Investigators.

Questions about your rights as a participant in a research study?

Contact the HREA Ethics Office. They are not involved with running the study.

(709) 777-6974|info@hrea.ca

Privacy policy