How to Take Part
NL Genome Project Status
Currently Enrolling Participants
You can take part in this pilot phase of the NL Genome Project if you meet the eligibility criteria and are a patient of one of the participating doctors.
Where can I take part?
Mount Pearl, NL
St. John's, NL
Port Blandford, NL
Who can take part?
If you meet the following criteria, you’re eligible to participate in the NL Genome Project
- 18 years of age or older
- Have a valid MCP #
- Able to provide written informed consent
- Willing to be re-contacted
- Willing to have your coded data shared with researchers both inside and outside of Canada
How does it work?
Before you decide whether or not to take part, a research nurse will give you an information pamphlet outlining the entire project and will review the project with you, explain any potential risks, and answer your questions. Remember, it’s completely up to you whether or not you take part!
Consent to Join the Study
You will first complete and sign the consent form to enroll in the NL Genome Project and grant permission for us to use your medical records for research. Then you’ll provide your contact information and fill out a health questionnaire.
Provide a Saliva Sample
Provide a saliva sample (less than half a teaspoon) by spitting in a tube. We’ll extract DNA from your saliva and analyze it using techniques like genotyping and sequencing.
We'll Study Your DNA
We'll combine and analyze the DNA, medical records, and health information from all our participants and look for patterns and genetic changes that could help us better understand health and disease. Read more about our research here!
Return Findings and Stay in Touch
Any findings that potentially impact your health will be returned to your doctor to discuss with you and our genetic counsellor, if you choose to receive them. Personal Traits will be shared directly with you.
Why take part?
People take part in health research for many different reasons, whether to help advance science or to learn more about their own health.
It's important to remember that you are the only person who can decide whether taking part is right for you. To help you through this process, a research nurse at your doctor’s office will review the project with you, explain any potential risks, and answer your questions. You can alsoreach out to ushere if you have any other questions.